Christian's PPB Cancer Journey
Christian's journey to beating Pleuropulmonary Blastoma (PPB) cancer!
Category: Uncategorized
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Day 3 of radiation complete and still going strong!
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Day two radiation done three more to go. We are meeting with the oncologist from our other hospital on Monday to see if there is any clinical trials that could benefit him. If not his oncologist has a new chemo treatment plan he will start after radiation therapy done. Have to love the insurance company’s,…
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Day 1 of proton radiation done. He did great it took about one hour.
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Thank you too father Omachi for blessing our son today. While we were waiting at the church the proton center called he starts radiation therapy tomorrow. His new chemo medicine is in the works. We have an appointment with a pediatric oncologist at our city hospital to talk about if there any research medicine that…
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Wednesday we spoke with his surgeon. surgery is not completely off the table but it’s just too risky. With only having one lung if they start taking pieces out not only are there serious risks but he would possibly require oxygen which they then ask what his quality of life would be. Everyone is in…
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Today we went to the proton center they made the impression of his body and did a MRI under anesthesia. The plan is to start proton radiating in two weeks unless they can get him in sooner. It will be five days this time instead of 20 because its a smaller area. Side effects can…
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Yesterday he had his MRI of chest under anesthesia. He was not feeling good in the morning he ended up getting sick a couple times. We spoke with the radiation oncologist yesterday we go Monday to the proton center to make an impression and will start proton radiation on the tumor in the left lung.…
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So not so great news today. Christian had pet scan and ct scan today and tomorrow he has an MRI scheduled. Today’s scan showed the tumor grew since his last scan. Six weeks ago it was 1.5cm and today 2.5 cm. We are speaking with radiation doctor tomorrow about possibly starting radiation if we go…
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The results from the fusion test came back and everything was negative, so they did not find any gene fusions to target. As of right now there is no more testing that we know of that can be done. All we have now is hope and faith that the chemotherapy is working. His appetite is…
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The results from the fusion test came back and everything was negative, so they did not find any gene fusions to target. As of right now there is no more testing that we know of that can be done. All we have now is hope and faith that the chemotherapy is working. His appetite is…
Christian's PPB Cancer Journey 