Christian's PPB Cancer Journey

Update from MRI of his femur and today’s conversation with his oncologist. Oncologist is waiting to review the images with his orthopedic surgeon. He believes it is PPB cancer it has came through the bone. PPB if it spreads it will spread to the bone and brain. At this point it is a question of not treating it so he can go on the list for trial medications or do they hit it with radiation.

Another possibility is removing by surgery but that can have complications. He said he had to say it but was discreet about it because kids were in the room but at some point if they don’t figure out a cure it will be a conversation on quality of life. We are going to fight this cancer and beat it we will not give up not now not ever. We are fighting with the insurance company to get a new chemo medication approved. It was sent in under Chris and they sent it in again the correct way and they denied it we are waiting for the appeal to get processed fingers crossed it gets approved if not we are back in a fight with the insurance company. We are waiting to hear back from the oncologist at are other hospital. See what she thinks about leaving it or doing radiation.

Final day of radiation today woohoo. He did amazing like always. The strength he has is remarkable. Friday he has an MRI with anesthesia figures crossed and pray to god it’s not another cancer spot.

Day 3 of radiation complete and still going strong!

Day two radiation done three more to go. We are meeting with the oncologist from our other hospital on Monday to see if there is any clinical trials that could benefit him. If not his oncologist has a new chemo treatment plan he will start after radiation therapy done. Have to love the insurance company’s, they already denied one chemo medication. Something needs to seriously be done about the health insurance company’s.

Day 1 of proton radiation done. He did great it took about one hour.

Thank you too father Omachi for blessing our son today. While we were waiting at the church the proton center called he starts radiation therapy tomorrow. His new chemo medicine is in the works. We have an appointment with a pediatric oncologist at our city hospital to talk about if there any research medicine that are available that might help him. We also seen his pulmonary doctor today and he has everything in motion incase he gets any of the side effects from radiation like coughing or fluid in his lung.

Wednesday we spoke with his surgeon. surgery is not completely off the table but it’s just too risky. With only having one lung if they start taking pieces out not only are there serious risks but he would possibly require oxygen which they then ask what his quality of life would be. Everyone is in agreement that surgery is not the route to go at this time. Today we met with his oncologist and the plan going forward for now is to stop the medication hes on right before radiation because it could not be working since the tumor grew quite a bit. After radiation is done, he will start a new chemo regimet. It will be one pill taken twice a day by mouth and one chemo med hung on an IV pump. We are still waiting for them to schedule an MRI on his leg. Depending on how that looks, they may do radiation on that area and treat it with therapy. We are also waiting to see the oncologist from the other hospital because there might be more testing they can do with bloodwork and they may have a different treatment that might be promising. His oncologist is on the registry for PPB cancer. Once any cancer comes back it becomes harder to get ride of it. His oncologist doesn’t know what to do to cure it at this point. We just keep praying that he will be cured this time. I pray to god we are right. Scared is an understatement. Something has to work. https://gofund.me/e957be7d https://christianscancerjourney.com

Today we went to the proton center they made the impression of his body and did a MRI under anesthesia. The plan is to start proton radiating in two weeks unless they can get him in sooner. It will be five days this time instead of 20 because its a smaller area. Side effects can happen four to six weeks after the side effects are coughing and fluid but we are hoping that will not happen. They don’t know yet but he may have to stop taking the chemo medication for the five days of radiation.