Christian's PPB Cancer Journey

So not so great news today. Christian had pet scan and ct scan today and tomorrow he has an MRI scheduled. Today’s scan showed the tumor grew since his last scan. Six weeks ago it was 1.5cm and today 2.5 cm. We are speaking with radiation doctor tomorrow about possibly starting radiation if we go with proton radiation therapy. he won’t be able to get on the schedule for a few weeks but they have another type of radiation that is an option. His oncologist should be calling before the weekend and we meet with the surgeon next week. Please continue the prayers. Chris found some more testing we are going to talk to the oncology team about doing.

The results from the fusion test came back and everything was negative, so they did not find any gene fusions to target. As of right now there is no more testing that we know of that can be done. All we have now is hope and faith that the chemotherapy is working. His appetite is still down it’s messing with his belly. His hair is starting to thin but he doesn’t mind he likes being bold like his daddy he says. His strength is unreal. We made a set-up at home to take pictures for his Make-A-Wish yard sign. They sent him a beautiful card and a special Make-A-Wish squishmellow. We took a picture of him and rubble with it and are going to make a heart puzzle for them. It’s amazing what they do for kids, making their wishes come true.

The results from the fusion test came back and everything was negative, so they did not find any gene fusions to target. As of right now there is no more testing that we know of that can be done. All we have now is hope and faith that the chemotherapy is working. His appetite is still down it’s messing with his belly. His hair is starting to thin but he doesn’t mind he likes being bold like his daddy he says. His strength is unreal. We made a set-up at home to take pictures for his Make-A-Wish yard sign. They sent him a beautiful card and a special Make-A-Wish Squishmellow. It’s amazing what they do for kids, making their wishes come true.

https://gofund.me/51ac8e507

We want to start by saying thank you — to every single person who has donated, shared Christian’s story, or kept our family in your thoughts and prayers. Your support means the world to us, and it truly gives us strength to keep pushing forward.

This past week we met with Christian’s Radiation Oncologist, and she confirmed that he is a good candidate for proton radiation again to target the new tumor. While the road ahead is still uncertain, this gives us hope and another option to fight back.

On a lighter note — we also found out that Christian is nearsighted and needs glasses. He was fitted for his very first pair last week, and they should be ready for pickup this week. We can’t wait to see him rocking his new look!

Thank you again for standing by our side. We will keep sharing updates here as we continue this journey.

https://gofund.me/51ac8e507

Our son Christian is just 7 years old, and he has already fought cancer four times. In 2020, shortly after his third birthday, Christian was diagnosed with Pleuropulmonary Blastoma (PPB) — a rare and aggressive form of childhood lung cancer that affects fewer than 50 children in the United States each year.

Pleuropulmonary Blastoma (PPB) is a fast-growing tumor that develops in the lungs and pleura (the lining of the chest). For families like ours, hearing this diagnosis is life-changing. Since that first day, Christian has endured chemotherapy, surgeries, hospital stays, and countless scans. Despite everything, he continues to smile, laugh, and inspire everyone around him.

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Christian’s Story

Christian’s journey with PPB has been filled with courage and resilience:

• Diagnosis One (2020): 12 cycles of chemotherapy, 3 chemo ports, and 2 major surgeries including removal of part of his right lung.
• Diagnosis Two: More chemotherapy and surgery to remove additional lung tissue and a section of his diaphragm.
• Diagnosis Three: A life-changing surgery where doctors removed his entire right lung, repaired a major artery, and placed a silicone implant to keep his heart and remaining lung in place.
• Diagnosis Four (Current): A new tumor appeared in his left lung. After exhausting standard PPB treatments, doctors are now exploring targeted therapies based on genetic testing.

You can read each chapter of Christian’s story in detail under the Christian’s Story section of this website.

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Support & Contact

If you’d like to support Christian, you can visit his GoFundMe page here. Even if you cannot donate, sharing his story helps more than you know.

If you are a parent facing PPB or another rare childhood cancer, we’d love to connect. Please reach out to us through the contact page — together, we can remind each other that we’re not in this alone.

Why We Created This Website

When we first heard the words Pleuropulmonary Blastoma, we felt completely alone. Information was scarce, and few families had shared their experiences online. We created this site to:

• Share Christian’s full PPB journey so other parents know what to expect.
• Provide resources for families navigating childhood cancer.
• Offer hope and encouragement to anyone facing rare pediatric cancers.

If you are a parent or loved one walking a similar path, please know that you are not alone. We hope Christian’s story helps guide you, comfort you, and give you strength.

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Spreading Awareness About PPB

Because Pleuropulmonary Blastoma is so rare, awareness is vital. By sharing Christian’s journey, we want to shed light on PPB and support research that could bring better treatments — and one day, a cure.

If you’ve found this site while searching for “PPB cancer,” “Pleuropulmonary Blastoma treatment,” or “childhood cancer stories,” we hope you find the information here helpful and encouraging.