Christian's PPB Cancer Journey

We met with the oncologist today he wanted to talk to us in person. He let us know that the last scan showed some small spots on his right side where the lung is gone and a half cm spot on the left lung again. He is thinking it is more cancer.

He wants to focus on his leg right now. We are hoping he doesn’t need surgery but we have already talked with his surgeon in the city and he wants to be in the room incase anything happens.

The oncologist and surgoen in westchester would like to see an updated PetScan to give them more information. The medicine was finally approved.

He will be the first to take it for PPB cancer. He hopes it works but there is no proof that it will. He said we need to start thinking about quality of life and will have us meet with at home hospital staff.

He said no kid with PPB that had a relapse has lived this long. Its the conversation that makes you sick. We are not going to lose hope. He wants us to keep doing things with him like we have he said we take trips and do things he didn’t know could be done in one day. He loves making memories and we love making memories with him.

He is our entire world. We meet with the orthopedic surgeon Friday then the other orthopedic surgeon next week. We pray that he will win this fight.