Christian's PPB Cancer Journey
Christian's journey to beating Pleuropulmonary Blastoma (PPB) cancer!
Category: Uncategorized
-
We were home for a couple days and we had to put him back on oxygen he started to de-stat. Monday he went for a chest CT and did it awake we were so happy and proud of him again. The doctor started talking about possibly going in and draining the fluid. His pulmonologist put…
-
We came home from the hospital Thursday. He is off of oxygen. His 02 levels dip a little at night time. We are continuing the IV antibiotics at home for another week. They delivered an oxygen tank for at home but we are still waiting for the portable one. We cannot wait until he is…
-
Latest update little man was not feeling good we brought him in to see the oncology team last Thursday and his o2 was down around 68-74. His pulmonologist was in the building and came to see him right away. They put him on oxygen and sent us by ambulance to the hospital. The plan was…
-
Friday he had chemotherapy treatment and has not felt good since. Tuesday we seen the pulmonary doctor he sent him for an x ray. He said it is unchanged but looks like it might look little better. Same day we seen the orthopedic surgeon he said it is just muscle tightness and he can start…
-
Friday we went for regular bloodwork to check counts and he ended up having a fever. They gave a round of antibiotics on the pump. Did another x ray and from what they can see it is still pneumonia. The pulmonary doctor started him on a different antibiotic. Hoping and praying it will get rid…
-
It has been a while since we did an update. He started a new chemo therapy regime. Week one he gets Gemcitabine and week two he gets Docetaxel and Gemciabine. Week three is bloodwork. Hes currently on day ten of cycle two. Two weeks ago he needed a blood transfusion and two days of the…
-
Last Friday we went for x ray the pneumothorax was gone. They did see a small infection said it could of been from not moving much because of the chest tube. Sunday we were in the ER he had a fever of 103.3 and a slight cough. The x ray that night looked good they…
-
We need a miracle very soon. It was a blessing in disguise he hasn’t been able to swallow the new chemo pill. His oncologist suggested placing an NG tube and doing a new CT scan to get a new base line. Thank god we did last Thursday they saw an air leak in his left…
-
He did amazing in physical therapy this week. We are so proud of him. Today he started the new chemo pill at home for ten days and then next week will have IV medication in office and then ten days off. His strength is incredible. We love him so much. He brings joy wherever he…
-
We saw the orthopedic surgeon today and had x ray done to follow up from his surgery on his femur. He said everything looks great. He can shower, take a bath, go swimming. He starts physical therapy tomorrow. He still can’t walk on it but that can be normal. He said when he’s ready to…
Christian's PPB Cancer Journey 