Christian's PPB Cancer Journey
Christian's journey to beating Pleuropulmonary Blastoma (PPB) cancer!
Category: Uncategorized
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He did amazing in physical therapy this week. We are so proud of him. Today he started the new chemo pill at home for ten days and then next week will have IV medication in office and then ten days off. His strength is incredible. We love him so much. He brings joy wherever he…
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We saw the orthopedic surgeon today and had x ray done to follow up from his surgery on his femur. He said everything looks great. He can shower, take a bath, go swimming. He starts physical therapy tomorrow. He still can’t walk on it but that can be normal. He said when he’s ready to…
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We met with the oncologist yesterday and the plan is to start the new chemo therapy March 6th. The pathology report came back the tumor they were able to take out of his leg came back positive for PPB cancer.
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Last Friday was surgery day they ended up placing a rod from the lower part of his femur up to about midway up his femur and six screws. Surgery took about three and a half hours. They took the catheter out that day and because of the epidural still being in he wasn’t able to…
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Last week being cleared for surgery. Pet scan results came back there is a spot on his pelvis that is new but could be nothing.They will do follow up scan .The same area around the clips in his chest is still lighting up. The tumor in his leg is still lighting up. Next week we…
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We met with the orthopedic surgeon today and the plan is to get a PetScan this Wednesday and if everything looks ok and there are no changes that would complicate doing surgery then surgery will be this Friday. If he was to stay in the cast it could be for atleast 8 months and there…
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We met with the oncologist today he wanted to talk to us in person. He let us know that the last scan showed some small spots on his right side where the lung is gone and a half cm spot on the left lung again. He is thinking it is more cancer. He wants to…
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Today sucked we saw a different orthopedic doctor yesterday. They ended up resetting the fracture and put a cast on his leg. He had new bone growing back already so if they would of did this last week maybe it would of been healed by now. It’s a good thing he was sitting on my…
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It has been a very busy week Tuesday he had his simulation under anesthesia. That went good. His leg is really bothering him it hurts just to move it. Wednesday he started radiation. The doctor told us it should stop hurting him soon. Thursday he had the bronchoscopy done. they did not see an air…
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Today his EKG was good and his echocardiogram thank god. It was nice to get good news that his heart is good times like this we can take a big breath. We spoke with the adult pulmonologist IR doctor. He is going to do a procedure on Thursday where he will put a breathing tube…