Christian's PPB Cancer Journey

It has been a while since we did an update. He has two CT scans the last one showed the spots on the bottom of his lung has gotten bigger. There is still a spot on the top of his lung and some other new spots. He goes for a EKG every other week plus chest ultrasounds. We see his pulmonologist every two weeks now, it was every week. He has physical therapy three times a week in Manhattan. His knee is still the size of a baseball. The shape of it changes the screws stick out more it is possible the bone is growing over the screws or the tumor can still be active Couple weeks ago the president passed us on the FDR drive he was heading into the city. His leg has been hurting him everyday sometimes all day. He is on about six different medication that includes his chemo pill. They wrote a script for THC for appetite and CBD for inflammation and pain. We met with a pain specialist he suggested a lot of his pain could be from the swelling pushing on nerves. He started him on a nerve medication.

The pharmacist at the weed store said Chris and me should try the gummies so we know how he feels. and it could help us with sleep. We said no we haven’t even had a drink in years we are to afraid he could spike a fever at anytime and we would have to drive to the hospital its not worth the risk. The pulmonologist wrote a script for a multi function ventilator for at home. He has had a lot of mucus when he eats. He wasn’t feeling good had a headache we checked his oxygen and it was low so we had to put him on a small amount of air. We are scared to death but we are still trying to keep faith.