We would like to start by saying that we are sorry for not posting an update sooner and that we are grateful for everyone’s understanding and privacy during this extremely difficult time for us. We made Christian a promise that would we do everything we could to help find a cure for this terrible disease so that no other family or child will have to go through what we have and are still going through. Since Christians passing, we have been doing some more research and have talked with a few people currently doing research and testing for new treatments and hopefully one day, a cure. We have decided that we would like to support the work being done by Dr. Kenneth Chen at UT Southwestern in Texas. He is currently running testing on a new medicine that is showing promise for slowing down progression of PPB tumors. We have teamed up with them and have created a fundraiser with UT Southwestern in Christians honor. If you are able, please offer a donation to this fundraiser. Every dollar goes directly to PPB research at Dr. Chen’s research lab. Please also help us to continue to spread awareness and share Christian’s story and fundraiser.
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