Christian's PPB Cancer Journey

Latest update little man was not feeling good we brought him in to see the oncology team last Thursday and his o2 was down around 68-74. His pulmonologist was in the building and came to see him right away. They put him on oxygen and sent us by ambulance to the hospital. The plan was IV antibiotic and breathing treatments. They did an x ray in the emergency room it looked the same from the previous one. He has been between 1-1.5 litter of oxygen. It seems like this antibiotic and the breathing treatments are helping get a lot of the mucus up. First couple night he coughed all night. His heart rate has been high at times. He’s stating really good today still on oxygen. They wanted him to go for a CT scan but doing it under anesthesia would be risky. He could end up in the PICU on high oxygen support. We are so proud of him he did the CT scan awake for the first time.

This his a huge milestone. He is so brave. Monday his oncologist came to the hospital to let us know the new trial medication we have been waiting for here and he could of started June 30th but one of the requirements is you can’t be on oxygen or have fluid in your chest. His oncologist is coming up with a back up plan. Tuesday he did the scan awake and Wednesday we found out when both the oncologist and pulmonary doctor came to see us at the same time. We knew it was either really good news or bad. Tuesday they came in to do an ultrasound because they seen fluid around his heart. The heart doctor said it looks old so they are not doing anything right now about it.

Wednesday the oncologist told us they see a new tumor on the top of his lung. They see fluid but its not enough to drain at this time. They are not sure if it is disease fluid or pneumonia. This all feels like a nightmare. We need a miracle like now.

Please everyone keep praying and help us command the cancer to be gone for good.

Monday they will do another ultrasound to see if the fluid behind his heart changes. When he had his lung removal surgery they also removed the bag around his heart. His heart will absorb what his lungs will. He also on a steroid to help with inflammation. One thing I love about the steroids is they make him hungry. It works better than the appetite stimulates he takes normally.