Christian's PPB Cancer Journey
Christian's journey to beating Pleuropulmonary Blastoma (PPB) cancer!
Category: Uncategorized
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Update from last week. Monday we meet with the oncologist signed papers went over everything. She does not know if this will work but it is lesser toxic than other options right now. But she thinks a good option while he still feels good. We are still trying to get the chemo medication approved that…
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Test results came back from the additional testing. Only one test came back positive with a treatable target drug. Spoke with the clinical trial doctor today. After discussing it with his oncologist we decided to go with it. While we continue to fight with the insurance company to approve his chemo medication. Hospital is working…
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Update from MRI of his femur and today’s conversation with his oncologist. Oncologist is waiting to review the images with his orthopedic surgeon. He believes it is PPB cancer it has came through the bone. PPB if it spreads it will spread to the bone and brain. At this point it is a question of…
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Final day of radiation today woohoo. He did amazing like always. The strength he has is remarkable. Friday he has an MRI with anesthesia figures crossed and pray to god it’s not another cancer spot.
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Day 4 proton radiation done one more day to go.We spoke with the radiologist today she said we will probably do scans in December. If he does get any side effects it will be during Thanksgiving so if he starts coughing that’s why. He could get fluid in his lung but his pulmonary doctor is…
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Day 3 of radiation complete and still going strong!
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Day two radiation done three more to go. We are meeting with the oncologist from our other hospital on Monday to see if there is any clinical trials that could benefit him. If not his oncologist has a new chemo treatment plan he will start after radiation therapy done. Have to love the insurance company’s,…
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Day 1 of proton radiation done. He did great it took about one hour.
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Thank you too father Omachi for blessing our son today. While we were waiting at the church the proton center called he starts radiation therapy tomorrow. His new chemo medicine is in the works. We have an appointment with a pediatric oncologist at our city hospital to talk about if there any research medicine that…
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Wednesday we spoke with his surgeon. surgery is not completely off the table but it’s just too risky. With only having one lung if they start taking pieces out not only are there serious risks but he would possibly require oxygen which they then ask what his quality of life would be. Everyone is in…
Christian's PPB Cancer Journey 